On this page you’ll information about learning disabilities and autism services, as well as neurodevelopmental services that you can self-refer yourself to in Suffolk and north east Essex. You can learn more about learning disabilities and autism on the nhs.uk website.
The NHS Constitution gives most people living in England the right to choose where to receive treatment.
Services in north east Essex
Unsure about where the boundaries we refer to lie? Enter your postcode to check whether you live in Ipswich and east Suffolk, north east Essex or west Suffolk.
About this service
The North Essex Learning Disability Service provides assessment, treatment and therapy from a range of skilled professionals to enable specialist health interventions to be delivered in the community.
Organisation that provides this service
Essex Learning Disability Partnership is provided by Hertfordshire Partnership University NHS Trust and Essex Partnership University NHS Trust (EPUT).
How to access this service
Telling us that you would like support is called a referral. A referral can be made by anyone. You can make a referral via the contact details listed on the service website.
The Early Intervention and Family Offer provides services to children, young people and families to support the management of neurodevelopmental conditions in young people aged 0-25. This includes help to navigate both the clinical aspect of their care and non-clinical services such as general or individual advice about their condition and educational, social and financial support.
Organisations that provide this service
Clinical assessment, diagnosis and support is provided by East Suffolk and North Essex NHS Foundation Trust (ESNEFT).
Support services for families are jointly provided by HCRG Care Group, Autism Anglia, Families in Focus and The Maze Group.
Clinical assessment, diagnosis and support
ESNEFT are the trust that manage Colchester and Ipswich hospitals. They provide clinical assessment and diagnoses for children and young people with suspected neurodevelopmental disorders (NDD). The ESNEFT NDD team can also liaise with fellow health and care professionals, such as physiotherapists or health visitors, if the child or young person presents with additional medical needs.
Benefits of a diagnosis
A diagnosis can help children, their families, teachers, and friends understand why they may be experiencing certain difficulties and what can be done to support them.
How to access this service
If you feel your child would benefit from having a (NDD) assessment, please speak to your child’s GP, therapist, school or health visitor. Assessments are available for children and young people aged 0 – 19.
Support services
Information about Early Support for families of children with neurodevelopmental conditions in north east Essex
Information about Early Support for families of children with neurodevelopmental conditions in north east Essex
Neurodevelopment Pathway Coordinators Service
Coordinators provide early and individualised support at any time in a family’s journey, whether they are already being supported by some services or are just beginning to explore the help on offer.
Coordinators act as a single point of access, and work to ensure families receive consistent support and access to all available information on relevant services. Coordinators work with families until the point that all of their needs have been fully met.
How to access this service, provided by HCRG Care Group, in partnership with Barnado’s
You can self-refer yourself to this service by contacting the Essex Child and Family Wellbeing Service directly.
Dial freephone 0300 247 0015 and ask for the Neurodevelopment Pathway Coordinators team. Alternatively, you can email the team at vcl.essexne-neurocoord@nhs.net.
Autism Anglia
Autism Anglia provide an advocacy service. They can help advocate on issues such as:
- Pre and post-diagnostic advice and support
- Access to Healthcare
- Education
- Housing
- Social care
- Welfare Rights
- Criminal justice
How to access services provided by Autism Anglia
Any individual, parent or professional from North East Essex are able to refer a child or young person into the advocacy service. This includes care co-ordinators, social workers, schools and health professionals. To refer yourself or a family you’re supporting, contact Autism Anglia direct.
Families InFocus (Essex)
Families InFocus offer one-to-one support, advice and guidance to families. Examples of support they offer include:
- helping families to complete disability benefits applications,
- giving advice on housing and social care issues
- supporting with all SEND educational issues, including advice and support with Education and health care (EHC) needs assessments and EHC plans (including preparing for and attending tribunals)
They also provide activity clubs, workshops, peer-to-peer coffee mornings.
How to access this service, provided by Families InFocus
You can self-refer yourself to this service by contacting Families InFocus directly.
The Maze Group
The MAZE Group run free monthly drop-in sessions, a specialist weekly programme and additional workshops to guide, advise and support families of children with additional needs. The Maze Group run special educational needs and disability (SEND) parenting groups with regular coffee mornings in Colchester and Tendring.
How to access this service, provided by The Maze Group
You can self-refer yourself to this service by contacting The Maze Group directly.
Health and care professional supporting a family?
Health and care professionals can contact the Neurodevelopment Pathway Coordinators team via SystmOne, by sending a referral task directly to the neurodevelopmental coordinators via the Essex Child and Family Wellbeing Service.
Services in Suffolk
Unsure about where the boundaries we refer to lie? Enter your postcode to check whether you live in Ipswich and east Suffolk, north east Essex or west Suffolk.
About this service
Seesaw is a children’s service that provides a range of diverse and engaging short breaks suitable for children with additional needs.
We Can services support adults with learning disabilities. Bespoke person-centred plans are created for each individual supported and services include leisure pursuits and access to qualifications.
Organisation that provides this service
Visit the Achieving Aspirations website
How to access this service
Please contact the provider directly to access this service. Contact details can be found on the Achieving Aspirations website.
About this service
The Neurodevelopmental Disorder (NDD) Pathway (East & West Suffolk) aims to provide a clear and structured approach to support families who require assistance with supporting a child or young person with neurodevelopmental conditions, autism spectrum disorder (ASD) and Attention-Deficit Hyperactivity Disorder (ADHD).
Who provides this service?
These services are provided by a range of both healthcare and voluntary/community organisations.
How to access this service
To access the Neurodevelopmental Pathway, families will need to collaborate with a professional who can act as the lead referrer for the Neurodevelopmental Referral process.
Useful links
- Essex Local Offer – information about support services and local opportunities for children and young people with SEND – find what you need all in one place.
- Suffolk Local Offer – information, advice and services for children and young people with SEND in Suffolk
- Suffolk Learning Disability Partnership – information about the Suffolk Joint Learning Disability Strategy
- SEND Strategy for Suffolk
- Ace Anglia – independent advocacy organisation based in Suffolk
- Primary Learning Disability Liaison Service – Suffolk, NHS Norfolk and Suffolk Foundation Trust (NSFT)
- Easy Health – an online library of accessible health information
- Information about annual health checks for people with learning disabilities
Resources
Please note that the below resources are intended to be printed and filled in by hand rather than electronically. Therefore they may not be accessible to screen reader technology.
Reasonable adjustments
Under the Equality Act 2010 the NHS must make it as easy for disabled people to use health services as it is for people who are not disabled. This is making reasonable adjustments. Visit our dedicated page to learn about the reasonable adjustments you or someone you care for may be entitled to.
Dynamic Support Register
The Dynamic Support Register (DSR) is a digital database which helps organisations to best support people with a learning disability and/or autism who are at risk of going to hospital. Find out more, including how to add yourself or someone you care for to the register.
LeDeR
LeDeR annual reports give information about the lives and deaths of people with a learning disability whose deaths have been notified to LeDeR. They cover notifications to the programme in the previous year. LeDeR began reviewing the lives and deaths of autistic adults with no learning disability in January 2022.
You can find the national NHS LeDeR report on the NHS website, and read reports for our local health and care system below.
2023-24
2022-23
2021-22
How to report a death on the LeDeR web platform
How to report a death on the LeDeR web platform
Questions or feedback?
Our Patient Advice and Liaison Service (PALs) is here to help. Ask a question, provide feedback or lodge a complaint.