Learning disabilities and autism services, and neurodevelopmental services

On this page you’ll information about learning disabilities and autism services, as well as neurodevelopmental services that you can self-refer yourself to in Suffolk and north east Essex. You can learn more about learning disabilities and autism on the nhs.uk website.

The NHS Constitution gives most people living in England the right to choose where to receive treatment.


Services in north east Essex

Unsure about where the boundaries we refer to lie? Enter your postcode to check whether you live in Ipswich and east Suffolk, north east Essex or west Suffolk.

About this service

The North Essex Learning Disability Service provides assessment, treatment and therapy from a range of skilled professionals to enable specialist health interventions to be delivered in the community.

Organisation that provides this service

Essex Learning Disability Partnership is provided by Hertfordshire Partnership University NHS Trust and Essex Partnership University NHS Trust (EPUT).

How to access this service

Telling us that you would like support is called a referral. A referral can be made by anyone. You can make a referral via the contact details listed on the service website.

The Early Intervention and Family Offer provides services to children, young people and families to support the management of neurodevelopmental conditions in young people aged 0-25. This includes help to navigate both the clinical aspect of their care and non-clinical services such as general or individual advice about their condition and educational, social and financial support.

Organisations that provide this service

Clinical assessment, diagnosis and support is provided by East Suffolk and North Essex NHS Foundation Trust (ESNEFT).

Support services for families are jointly provided by HCRG Care Group, Autism Anglia, Families in Focus and The Maze Group.

Clinical assessment, diagnosis and support

ESNEFT are the trust that manage Colchester and Ipswich hospitals. They provide clinical assessment and diagnoses for children and young people with suspected neurodevelopmental disorders (NDD). The ESNEFT NDD team can also liaise with fellow health and care professionals, such as physiotherapists or health visitors, if the child or young person presents with additional medical needs.

Benefits of a diagnosis

A diagnosis can help children, their families, teachers, and friends understand why they may be experiencing certain difficulties and what can be done to support them.

How to access this service

If you feel your child would benefit from having a (NDD) assessment, please speak to your child’s GP, therapist, school or health visitor. Assessments are available for children and young people aged 0 – 19.

Support services

 

Information about Early Support for families of children with neurodevelopmental conditions in north east Essex

Information about Early Support for families of children with neurodevelopmental conditions in north east Essex

 

Neurodevelopment Pathway Coordinators Service

Coordinators provide early and individualised support at any time in a family’s journey, whether they are already being supported by some services or are just beginning to explore the help on offer.

Coordinators act as a single point of access, and work to ensure families receive consistent support and access to all available information on relevant services. Coordinators work with families until the point that all of their needs have been fully met.

How to access this service, provided by HCRG Care Group, in partnership with Barnado’s

You can self-refer yourself to this service by contacting the Essex Child and Family Wellbeing Service directly.

Dial freephone 0300 247 0015 and ask for the Neurodevelopment Pathway Coordinators team. Alternatively, you can email the team at vcl.essexne-neurocoord@nhs.net.

Autism Anglia

Autism Anglia provide an advocacy service. They can help advocate on issues such as:

  • Pre and post-diagnostic advice and support
  • Access to Healthcare
  • Education
  • Housing
  • Social care
  • Welfare Rights
  • Criminal justice
How to access services provided by Autism Anglia

Any individual, parent or professional from North East Essex are able to refer a child or young person into the advocacy service. This includes care co-ordinators, social workers, schools and health professionals. To refer yourself or a family you’re supporting, contact Autism Anglia direct.

Families InFocus (Essex)

Families InFocus offer one-to-one support, advice and guidance to families. Examples of support they offer include:

  • helping families to complete disability benefits applications,
  • giving advice on housing and social care issues
  • supporting with all SEND educational issues, including advice and support with Education and health care (EHC) needs assessments and EHC plans (including preparing for and attending tribunals)

They also provide activity clubs, workshops, peer-to-peer coffee mornings.

How to access this service, provided by Families InFocus

You can self-refer yourself to this service by contacting Families InFocus directly.

The Maze Group

The MAZE Group run free monthly drop-in sessions, a specialist weekly programme and additional workshops to guide, advise and support families of children with additional needs. The Maze Group run special educational needs and disability (SEND) parenting groups with regular coffee mornings in Colchester and Tendring.

How to access this service, provided by The Maze Group

You can self-refer yourself to this service by contacting The Maze Group directly.

Health and care professional supporting a family?

Health and care professionals can contact the Neurodevelopment Pathway Coordinators team via SystmOne, by sending a referral task directly to the neurodevelopmental coordinators via the Essex Child and Family Wellbeing Service.


Services in Suffolk

Unsure about where the boundaries we refer to lie? Enter your postcode to check whether you live in Ipswich and east Suffolk, north east Essex or west Suffolk.

About this service

Seesaw is a children’s service that provides a range of diverse and engaging short breaks suitable for children with additional needs.

We Can services support adults with learning disabilities. Bespoke person-centred plans are created for each individual supported and services include leisure pursuits and access to qualifications.

Organisation that provides this service

Visit the Achieving Aspirations website

How to access this service

Please contact the provider directly to access this service. Contact details can be found on the Achieving Aspirations website.

About this service

The Neurodevelopmental Disorder (NDD) Pathway (East & West Suffolk) aims to provide a clear and structured approach to support families who require assistance with supporting a child or young person with neurodevelopmental conditions, autism spectrum disorder (ASD) and Attention-Deficit Hyperactivity Disorder (ADHD).

Who provides this service?

These services are provided by a range of both healthcare and voluntary/community organisations.

How to access this service

To access the Neurodevelopmental Pathway, families will need to collaborate with a professional who can act as the lead referrer for the Neurodevelopmental Referral process.



Resources

Please note that the below resources are intended to be printed and filled in by hand rather than electronically. Therefore they may not be accessible to screen reader technology.


Reasonable adjustments

Under the Equality Act 2010 the NHS must make it as easy for disabled people to use health services as it is for people who are not disabled. This is making reasonable adjustments. Visit our dedicated page to learn about the reasonable adjustments you or someone you care for may be entitled to.


Dynamic Support Register

The Dynamic Support Register (DSR) is a digital database which helps organisations to best support people with a learning disability and/or autism who are at risk of going to hospital. Find out more, including how to add yourself or someone you care for to the register.


LeDeR

LeDeR annual reports give information about the lives and deaths of people with a learning disability whose deaths have been notified to LeDeR. They cover notifications to the programme in the previous year. LeDeR began reviewing the lives and deaths of autistic adults with no learning disability in January 2022.

You can find the national NHS LeDeR report on the NHS website, and read reports for our local health and care system below.

2023-24

2022-23

2021-22

How to report a death on the LeDeR web platform

How to report a death on the LeDeR web platform


Questions or feedback?

Our Patient Advice and Liaison Service (PALs) is here to help. Ask a question, provide feedback or lodge a complaint.

Page last modified: 27 September 2024
Next review due: 27 March 2025